Retinitis Pigmentosa

If a child is diagnosed as having a Retinal Degenerative problem, when and what should I tell him or her?

There is no hard and fast answer to this. Children have varying needs depending on their age and maturity. Although they are often perceptive and sense there is a problem, they may be capable of absorbing only a little information at a time.

Answer questions frankly and positively, not giving more information than your child has requested. Help him, or her, to come to terms with the problem, but do not panic or become over-protective.

Do not let children use this problem as an excuse for not fulfilling their full potential, A parent may find it helpful to discuss the difficulties with other parents who have faced, or are facing, similar problems.

Your local branch of Retina South Africa may be able to help in this regard. Professional advice may also be necessary. Information brochures for teachers are available from the Foundation or may be downloaded from this site